We also recently found out that my husbands sister is not a match for the stem cell transplant so now they are looking to the national registry to find a donor, and who knows how long that will take. I urge anyone who is not currently on the registry to join, they will send you a free kit for testing and you may (or may never) be called to help save someones life. A family friend of ours has been on the registry list for 18 years and has never been called but she knows that if someone out there needed her help she would be able to be there for someone. All you do is swab your cheek and send it back, it is that simple!
We are also finding out that he may be becoming resistant to the platelet transfusions they have been giving him, he is having a lot of bleeding issues lately. They will be doing further testing to see if his body is destroying them just as fast as they are giving them to him.
Needless to say this is all a work in progress. The hospital is an hour away otherwise I would be with him every day that I could. We have a lot of friends and family supporting us in this time of need and I thank them very much for all the help! We will see what the new year brings us.
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